Since being pregnant, things have worsened. The swelling in my leg has gone to another level. Elephant trunk leg now.Read More
There are few problems that can’t be cured by a good poop and a nap.Read More
These are my must have items to prepare for Baby Morris (keep reading for a sneak peek of our baby nursey).Read More
Losing my hair during chemo was one of the most traumatic and infuriating side effects. First a few strands, then several strands, then handfuls to the point where I was scared to touch my head.
Prior to being diagnosed I had long red hair. It was that way all my life. If you are a redhead (shout out to my fellow gingers!) your identity is wrapped up in your hair. I loved my long hair. It made me feel beautiful, sexy, youthful. But it was about to fall out.
I started by cutting it shorter. This way the hair loss would be less traumatic when it did happen. Started with a bob.
About 3 weeks into chemo it began (will be different depending on the type of chemo you receive). It started slowly and over the course of 5 days accelerated. First just a few strands at a time but then more. It got to the point where I was mad at my husband for running his hands through his hair. How dare he touch his hair in front of me when I can’t run my hands through mine? Ridiculously misplaced anger but real anger.
Each day became more stressful. I wanted to keep my locks as long as possible but it wasn’t worth the stress. It was completely out of my control so I took the power back. I called up my stylist and asked him to buzz it off. I was grinning ear to ear. This was the moment I was dreading. I took that power back from cancer. My hair loss was inevitable but it was going to be happening on my own time.
I’ve heard people say that it is vain to be upset over hair loss. It is no vanity. This is something that is happening to you. Something you have very little control over. In a lot of cases, if you want potentially life-saving treatment – this is going to be one of the down sides. Of course, I was going to choose life over my hair but it’s still difficult. You are allowed to mourn the loss of your hair
How can you be pregnant when you had ovarian cancer? It’s tough to comprehend so let me share the details.Read More
This honestly all happened so organically….Read More
Just wrapped up the first month of coaching the Cancer Fatigue Fighter (CFF) Program. It’s been completely awesome – but I knew it would be. But there have been some surprises along the way! Somethings you may not have been expecting. Read on to find out more.Read More
Welcome to Part 2 of Everything You Need to Know About Blood Clots. In Part 1, we took a look at how you can tell if you have a blood clot. What are the signs that you are looking for? What should you do if you think you have a blood clot? For that info and more check out Part 1.
In Part 2, let’s look at what happens once you know you have a blood clot. How do we get rid of it? How do you prevent this from happening again? Read on…Read More
It’s a problem that affects A LOT of cancer fighters but we don’t hear a lot about – blood clots. People with cancer are much more likely to have a blood clot (about 20% of cancer fighters!). Welcome to Part 1 of a 2 part series on everything you need to know about blood clots.
What Is a blood clot?
A blood clot is when different cells, that make up your blood, gather and turn to a gel-like consistency (aka clot).Read More
The number one side effect cancer fighters battle? FATIGUE. UGHRead More
There are instagrammers out there doing incredible things. Sharing works of art along with thought provoking writing. It’s great to follow along. But it gets even more impressive.Read More
Being diagnosed with cancer is expensive. Plus it’s an expense that comes out of nowhere. Now we are fortunate in Canada to live within a publicly funded health care system – meaning that, for the most part, treatment, doctor visits, or scans, do not directly cost you anything. This is massively helpful. But what people don’t realize is that all the other expenses (e.g. time away from work, medications, support appointments) really adds up.Read More
Medications Every Cancer Fighter Needs in the Medicine Cabinet
As a pharmacist, I have a pretty extensive home medicine cabinet (you might have already guessed). So what do I use for myself when plagued with a side effect of chemo or an everyday ailment?
Below are some of my “must have” items for your personal medicine cabinet. (Scroll to the bottom to see a complete list)
(1) Aches and Pains
You’ll experience your fair share of aches and pains when receiving cancer treatment and heck (!) everyone gets a headache. If you have cancer, try acetaminophen (Tylenol) rather than ibuprofen (Advil). People diagnosed with cancer have a greater risk of suffering from a bleed (e.g. bleed in your stomach, etc) which can be very serious. Ibuprofen (or its cousin drug - naproxen) can increase your bleed risk. Acetaminophen on the other hand – does not. Play it safe and stick with plain acetaminophen. Of course, before you take acetaminophen, you need to make sure you don’t have a fever (more on this in a bit).
I do like using creams or ointments for relief to specific areas (e.g. sore back). There are two products I keep on hand at all times: diclofenac gel (Voltaren) and A535. Diclofenac is an anti-inflammatory gel so it will help to reduce inflammation without much absorption to the rest of your body. A535 on the other hand, doesn’t directly improve the injury but it does offer quick relief. It acts as a counterirritant meaning that it causes a sensation on the skin tricking the brain into believing that the injury pain itself is lesser. There are lots of products on the market that work in a similar way but A535 is my personal preference.
When a fever spikes – you need to be prepared. As a cancer pharmacist and cancer survivor, I am all too familiar with fever. When your body’s immune system is suppressed from chemotherapy, you won’t show the typical signs of infection. This is why a fever is such an important indicator – it is the ONLY sign that your body is fighting a potentially deadly bug or virus. If you are feeling unwell, the first thing you need to do is take your temperature so you need a good thermometer.
Now, by ‘good’ thermometer, I don’t mean expensive. I prefer to take a body temperature under the tongue for a couple of reasons. A temperature reading from under the tongue is more accurate compared to the armpit or the forehead. A reading in the ear is also very accurate but the cost of the thermometer will increase. When you state a body temperature, most people will assume it is under the tongue or in the ear. Keep in mind that a reading from the armpit, forehead, or rectum will result in higher or lower reported temperatures.
If you spike a temperature – it is a medical emergency so go straight to the emergency room to be assessed.
Having a good poop can solve a lot of your problems. It is true! Being constipated can make you feel like shit (pun intended). My two favorites for constipation are senokot and lax-a-day. Senokot, a stimulant laxative, is a tablet that will work in about 8 hours. Alternatively, lax-a-day is a tasteless powder that you can mix into any liquid but takes a bit longer to work (around 2-3 days). If you are fighting constipation, start with one of these two agents depending on the urgency of your situation.
Nausea from chemotherapy or cancer is tough to control without getting a prescription. Most people will look for dimenhydrinate (Gravol) when feeling nauseated but unfortunately it doesn’t work very well in nausea from chemotherapy.
Depending on the type of chemotherapy you may require nothing to control nausea or you may require several medications. One of my favorite medications for nausea and vomiting from chemotherapy is ondansetron. It works well in the days following chemotherapy to help control symptoms but if you require several doses, you may find yourself constipated. Steroids (e.g. dexamethasone) are also commonly used to control chemotherapy nausea. If you have ever taken steroids, you know that they can increase your appetite and disrupt your sleep.
There are lots of other drugs available to control nausea but it really depends on the individual type of chemotherapy treatment to comment on what works best.
Chemotherapy can definitely give you heartburn. If you have never experienced the sensation of burning or pain in your chest before, it can be very alarming. Tums are a good option to control heartburn but they don’t last for very long (e.g. 20-30 minutes). Instead, try ranitidine (Zantac). It should control symptoms for approximately 12 hours and have really no side effects worth mentioning.
If you are fighting cancer, you know that the weird and wonderful side effects from chemotherapy can seem endless. Below is an inventory of my personal medicine cabinet to help stock yours.
AmydeePharmD’s Personal Medicine Cabinet For the Cancer Fighter
-Medical Emergency – go to the E.R.
-PEG 3350 (e.g. Lax-a-Day)
-Ranitidine (e.g. Zantac)
-Dry eyes - Lubricating eye drops (e.g. Thera Tears)
-Red eyes - Visine
I get asked this question all the time… ‘What should I get someone fighting cancer?’
You want to help. You want to get them something that will ease their discomfort. But you don’t know what that special thing is. It’s tough to know unless you’ve been there yourself. Well, you are in luck – I’ve been there! Let me tell you what someone fighting cancer ACTUALLY wants to receive as a gift.
1) Blanket Scarf
When you are fighting cancer, there is a lot of down time. Many days spent in your bed, resting and recovering for the next round of treatment. A blanket scarf is the perfect gift. Something you can wear out but also doubles as a blanket when you are sitting receiving chemo. This gift is working double time for cancer fighters.
2) The Surviv(her) Book
Fighting cancer can be lonely. It’s so important to connect with other in the same position because they just get it! The Surviv(her) book is a collection of portraits and stories of young women who are fighting cancer. It’s incredibly inspiring and lets every cancer fighter know they are not alone. Better yet – all the proceeds go straight to the Surviv(her) Foundations (a charity that connects survivors and supports research to find a cure).
3) Linen Spray
I wasn’t kidding about those long days resting in bed. It can become intolerable to spend so much time in bed. You feel like you’ll never escape. To keep things fresh and relaxing, try this linen and body spray from Bath Poetry. The calming lavender scent will offer your cancer fighter a peaceful escape.
As practical as it can get. Everyone getting chemotherapy needs a thermometer. Why? When your body is beaten down and immunocompromised by chemotherapy, you won’t display signs of an infection like you would when you are healthy. Sometimes the only clue that your body is fighting a potentially deadly infection, it by your body temperature. Cancer fighters need a thermometer at home, in the car, in your bag – ready to grab wherever you are.
5) The Surviv(her) Box
A gift basket is always nice but you want something that speaks to a cancer fighter - The Surviv(her) box is a perfect fit. This gift box is filled with practical goodies that will offer comfort and a bit of sparkle. Each box comes with a hand-written note from a fellow cancer fighter, offering encouragement and support.
As a cancer fighter you are always searching for something that offers comfortable and allows you to escape from the everyday fight. These items offer just that! Happy shopping.
The shock of being diagnosed with cancer makes your head spin. That’s completely normal. It throws you into a world that is so foreign and unwanted. It’s hard to know where to start or what is important to know. Read on, and start with these three steps:
1. One Step at a Time, One Day at a Time
It seems like there are a million things that need to be researched and organized – a million questions that need to be asked and answered. But stop. Slow down. Take a deep breath.
Not everything needs to be addressed all at once. I often see people getting lost in the weeds of cancer. Some focus intensely on minor questions or details that they deem critical, but then they end up missing the big picture points that are actually critical for moving forward. Focus on one main task or problem at a time.
When I was diagnosed, this meant:
Day 1: Get an ultrasound organized
Day 2: Meet with the gynecologist
Day 3: Get a CT scan organized
Cancer is a war – not a single battle. Plan your attack accordingly.
2. Get Your Life in Order
There’s no denying that a cancer diagnosis puts your mortality front and center. Prepare for the unthinkable… because none of us know what the future holds. Obviously, if you don’t have a will, now is the time to get one in place. But you need to go one step further. Completing an Advanced Care Directive (Living Will) before you begin any type of treatment will offer clarity to your family and friends in the unfortunate event that your health deteriorates further. Many hospitals and health regions offer free resources and forms. For the Saskatchewan Health Region, visit here: Advanced Care Directive.
You also need to organize your communication. Having a clear path of communication to your friends and family will simplify your life. You can’t spend your time emailing, texting, and phoning with every update, so organize a way to quickly communicate. This might mean having a friend or family member act as a ‘point person’ to field questions. You provide information to one person, and they circulate that information to the rest. Additionally, there are so many options here – blogs, private/public Facebook groups, What’s App groups. Pick the best fit for you. For me, this meant setting up a shared photo gallery that friends and family could access to see pictures of me post-surgery and during treatment. For me, showing people that I was recovering (instead of them just hearing) really put their minds at ease.
Whatever way you decide, be sure to put your own privacy and boundaries first. You’ll find that well-intentioned people will ask for your time and energy… but these are finite resources now. People may be insistent, but don’t be afraid to decline phone calls or redirect people back to your point person for updates and information.
3. Be Persistent but Polite
You have to be your own advocate. Listen to the voice inside of you, and follow through if something is really nagging at you. No questions are dumb questions. You aren’t wasting anyone’s time. When it comes to your health, you are the only one that has to live with the consequences of what is happening to your body so make sure you are satisfied with both the answers and care you are receiving.
Now, this doesn’t mean you need to be demanding or short with people. I like to say, “Be persistent but polite.” Just like in every other area of life, being rude doesn’t often make people want to go the extra mile for you. Health care is no different. You will get further if you reinforce your concerns in a polite and persistent manner, rather than making demands.
When you’re thrown into the world of cancer, it’s difficult to know where to begin. Start with these three steps, and you will be on a path that supports the clarity and calmness that you will need to fight the big ‘C.’
Photo Credit -Nancy Newby Photography
As featured on SaskPress Link Below-
THIS is how we can connect survivors living in rural and remote areas!Read More
Since being diagnosed with the big C, all my efforts surrounding cancer have been focused in a few key areas. Areas that I believe, will make a difference in the lives of women fighting cancer. Support the much-needed research that will eventually find a cure and connect young female cancer survivors.
Connecting survivors isn’t as straight forward as you would think. The problem is that a lot of people or organizations treat all cancer fighters the same. You have cancer therefore you should be able to connect. This couldn’t be farther from the truth. How am I, as a 30 year old female with ovarian cancer supposed to connect with a 70 year old man with prostate cancer? It’s just not going to be the same cancer experience. There needs to be a way to connect cancer fighters who are dealing with the same side effects or undergoing the same surgery.
Cue the Breast Cancer Healthline App. This is a FREE app that connects women fighting breast cancer based on their individual interests and concerns. Within minutes of downloading the app, I was chatting with survivors from all over the world who were facing the same issues I am (long-standing effects of my surgery, healing relationships post diagnosis). These women just get it! It’s amazing to not have to explain yourself or what you are facing because the women you are connected with have all been there too. Breast Cancer Healthline treats every woman as a unique cancer fighter – just the way it should be.
Over the next month, I’ve partnered with Breast Cancer Healthline to share with you my first-hand experience. I’ll be exploring different features within the app, hosting an In-app live discussion, and sharing the connections made to help with my life after cancer.
Following me here or on Instagram/facebook (@amydeepharmd) to learn more about my experience with Breast Cancer Healthline.
In the meantime…. Download the free app here —-> https://go.onelink.me/faaH/30494bba
It's tough. It's draining.
This past week, I had the honor of being a spokeswoman for Ovarian Cancer Canada's Walk of Hope. What a wonderful opportunity for me. What a wonderful event to bring people together and get behind a disease that desperately needs more support.
Events like this are tough as a young survivor. Your own health and immortality is still so front and centre. I look around at the other survivors and these women are different than me. They are older, some MUCH older. My struggles, my challenges, are different. It's tough to relate or find comfort when you feel like you don't fit in.
I asked one of my girlfriends, "where are the other young survivors?" Have they all passed away? I'm I one of the few that are left? Maybe this is partly true but I don't think it's the only reason.
When the feeling of your own diagnosis are still so fresh, it's difficult to show up at events which rip that wound back open. I've heard from other young survivors, they avoid these type of events as they are too draining and exhausting. Who can blame them really?
Some days it seems like cancer is all around. As a friend or family standing on the sidelines, it’s difficult to know what to say or do when someone you love is facing this terrifying diagnosis. As both a cancer pharmacist and cancer survivor, I have learned what works and what does not. Below are three tips when talking to someone with cancer.
1) Don't Ask For a Miracle
Cancer is often thought of as just one monstrous disease but it is actually a thousand differ diseases all under one umbrella term. Some types of cancers are deadly but others are curable. Saying to someone that you’re ‘praying for a miracle’ when a cure is not only probable but likely, can be both startling and insulting. Without knowing the specifics of a diagnosis, it’s impossible to know the outcome. Some types of cancer need medicine and science rather than a miracle.
2) Don’t Ask ‘What Can I Do’
‘Let me know what I can do for you’ is a reflex statement almost entirely empty of meaning. Instead of asking if there’s anything you can do to help - just do. Leave supper, shovel snow, or walk the dog. It does not have to be complicated or involve a lot of planning. If you want to help - just do.
3) Don’t Over Do The Positivity
Everyone has bad days and this doesn’t differ after a cancer diagnosis. It is completely normal and allowed. But some feel the only way to interact with someone battling cancer is to flood the conversation with positivity. There is nothing more irritating than having rainbows and sunshine shoved at you when you really just need to get something off your chest. Statements like “well at least you have…” or “look on the bright side…” are not going to be helpful. If someone with cancer is expressing a frustration, listen. It’s that simple. Listen, provide your opinion, and move on.
Every cancer is different and every person touched by the disease is impacted differently. These three tips will help you to be a great asset to family and friends.
Had the pleasure of chatting with Eric Anderson (free lance reporter for CBC)! The audio file is attached below!